We are still in the hospital. His sodium is better now. Althought 150 is really not bad for him as long as he is hydrated. He has not thrown up since Sunday. His temp is ok again. They ran a CBC to make sure he didn’t have an infection (he doesn’t). They are now concerned that he might have Diabetes Insipidus (water diabetes). This has been a concern in the past. They did some tests and he is borderline with diabetes insipidus. Sooo, we are going to start him on a low dose of the hormone that the pituitary gland would normally produce. It will be a low dose given orally ever night. It will help him to concentrate his urine better and keep more water in his system instead of peeing it out. Jonathan’s pituitary gland is very tiny, so we will eventually have to replace a lot of his hormones. He is already getting a daily dose of hydrocortisone (what the adrenal glands produce to help your body deal with stress). The level of his thyroid hormone is also getting lower as he gets bigger because his pituitary can only produce so much, so we will more than likely have to start giving him thyroid hormone too before the end of the year.
If all goes according to the doctor’s plans, it looks like we will be able to go home tomorrow.
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