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Jonathan has been doing well, pretty much since coming home from the hospital in February. His only health issues, other than the normal stuff, was one or two hours of strep throat that didn’t last too long and a sinus infection following a cold.
He really isn’t my little boy anymore :). He has gained, as of two weeks ago, 15 pounds since February. He is also almost as tall as me now. He comes to approximately my chin.
Anyway, just wanted to let everyone know how well he is doing. The Lord is good.
Jonathan is doing well. We officially withdrew him from school back in April. We decided that for his health that that was the best decision. We are very grateful to the Lord that he is doing so well. Since he was in the hospital back in February he has gained around 8 or 9 pounds which is great for him (not as great for me who carries him so much :).
His sodium has started to be a little higher which is not good, so he has started on a low dose of DDAVP. We are working with our new endocrinologist to get his dose just right, but so far it seems to be helping.
Jonathan was released from the hospital late yesterday afternoon. He is much better. Thanks so much for all your prayers.
Jonathan is better. His sodium is back down to his normal. We are moving to the floor today. He is still sleeping a lot, but all the doctor’s agree that it’s just because he’s so worn out from everything that has happened. We will be moving to the Endocrinology floor today so that the Endocrinologist can keep an eye on his sodium and how it does to him eating again and being more normal. They are stopping the IV today as well.
It has been determined that he did not have sepsis. They cultured the bacteria that they got in the blood and neither antibiotic that he was on woudl have killed it and he got better, thus, no sepsis.
Hopefully, we will get to go home late tomorrow or Saturday. No doctor has mentioned a time frame for going home, but since he is mostly back to normal except the sleeping and just now starting to eat again, I can’t see them keeping him a whole lot longer.
Bryan, Heather and I are all feeling better as well. I’m very grateful that my sisters could stay up here at the hospital with him while we were all sick.
Thanks for your prayers.
Jonathan is still in the ICU. They did extubate him yesterday, but his body was still under so much sedation that they had to give him oxygen. He is completely off the blood pressure meds now. He is obviously off the ventilator. His sodium came back up again and we don’t know why, but by this morning it had started to come down again. His blood culture came back and he does have sepsis. However, since they suspected this at the beginning they are already treating him with two antibiotics that would cover pretty much any kind of bacteria. He hasn’t eaten since Friday so we are hoping that they let him try to eat today sometime. The doctor’s plan to try to wean him off the oxygen today and also take out his central line and just use his reguarl iv site for meds and fluids.
On another note, Bryan, Heather and I all came down with a stomach virus last night. Probably the same one that Jonathan had. We are all running fever, but are no longer throwing up, so for that we are grateful. My sisters are staying with Jonathan up at the hospital since I cannot be there.
Please keep us all in your prayers.
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