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Update on Jonathan

Jonathan is doing well. We officially withdrew him from school back in April. We decided that for his health that that was the best decision. We are very grateful to the Lord that he is doing so well. Since he was in the hospital back in February he has gained around 8 or 9 pounds which is great for him (not as great for me who carries him so much :).
His sodium has started to be a little higher which is not good, so he has started on a low dose of DDAVP. We are working with our new endocrinologist to get his dose just right, but so far it seems to be helping.

Jonathan is home!!!!

Jonathan was released from the hospital late yesterday afternoon.  He is much better.  Thanks so much for all your prayers.

Update to the Update

Jonathan is still in the ICU.  They did extubate him yesterday, but his body was still under so much sedation that they had to give him oxygen.  He is completely off the blood pressure meds now.  He is obviously off the ventilator.  His sodium came back up again and we don’t know why, but by this morning it had started to come down again.  His blood culture came back and he does have sepsis.  However, since they suspected this at the beginning they are already treating him with two antibiotics that would cover pretty much any kind of bacteria.  He hasn’t eaten since Friday so we are hoping that they let him try to eat today sometime.  The doctor’s plan to try to wean him off the oxygen today and also take out his central line and just use his reguarl iv site for meds and fluids.

On another note, Bryan, Heather and I all came down with a stomach virus last night.  Probably the same one that Jonathan had.  We are all running fever, but are no longer throwing up, so for that we are grateful.  My sisters are staying with Jonathan up at the hospital since I cannot be there.

Please keep us all in your prayers.

Hospital update

We are in the ICU. Jonathan started out on two blood pressure meds to try to get his blood pressure up to the low end of ok. As of right now, he has been weaned off one of those meds and they are starting to wean him off the second. Will probably have him completely off the blood pressure meds by morning ahift change and then be able to take him off the ventilator and extubate him. He is also hydrated again.

Jonathan is sick again.

He started throwing up last night and having diarrhea. Had to bring him to the ER this morning. They had to intubate him and put him on a ventilator. He will be moving to the icu soon.