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Updated on Jonathan

Jonathan came through his surgery great. Came home the next day. However, he has now developed an infection at the surgery site. He started two very strong antibiotics this morning and has a followup appt with the ENT scheduled for 8am on Wednesday. Hopefully, he will start to feel better soon.

Jonathan and the ENT

Well, we took Jonathan to see the ENT this morning because of a recurring infection that he has had in front of his left ear. Turns out, he was born with basically a sinus area in front of his left ear. There might be one in front of the right also, but he’s never had an infection there. Anyway, long story short, he was on 3 round of antibiotics this summer to finally get rid of an infection of this area. The ENT is going to remove the whole sinus area by cutting it out. Jonathan’s surgery is scheduled for October 20. There is an 80% chance that this will keep it from ever getting infected again.

Jonathan is sick

Jonathan has a stomach virus again/still.  He threw up on Wednesday and then seemed to get better.  But, then he threw up again last night.  Also, we have an appt. with the ENT on Wednesday to see about possible surgery to remove some of the tissue where the sebaceous cyst keeps getting infected.

Update on Jonathan

Turns out, Jonathan does not have full blown Diabetes insipidus. The small dose of DDAVP that they put him on brought his sodium level down to 143 which would be great for a normal person, but was really bad for Jonathan. Because his body wanted his sodium to be higher, he basically just fell asleep and couldn’t wake up, which just happens to be a symptom of your sodium being too low. So, they have now taken him off of the DDVAP and we are back to the way things were before.

Jonathan has also been dealing with a very infected sebaceous cyst that we noticed about two days after he got out of the hospital. He will finish his second round of very strong antibiotics tomorrow and it finally looks a lot better. Thank the Lord we did not have to go back to the hospital for that.

We were scheduled to pick up his new wheelchair on Monday, but it is now not going to be ready in time, so we are going to be picking it up on June 23. I can’t wait. I’ll be so glad to not be pushing around a purple wheelchair anymore. Plus, the new one is about 20 pounds lighter.

Jonathan is home!!!

Jonathan was released from the hospital this afternoon.  He is now on a daily dose of DDAVP for his partial Diabetes insipidus.  He has this because his pituitary gland is so small.  Thankfully, his pituitary gland works enough and we are only supplementing what it can’t handle.