It’s been a long time, so I’ll try to get everyone caught up on Jonathan. He is officially 17 now. He is 5’2″ (definitely taller than me) and he now weighs 87 lbs. In the past year, he has started a new seizure med that is doing wonders for him. He is doing so well in fact that we are taking him off of his original seizure med. He will still be taking two seizure meds, but that’s better than three 🙂
Since we pulled him out of the school system at age 12 he has been much healthier. It just became very clear to us that the progress that he was making at school was not worth the risk to his health.
We saw the Orthopedic doctor this past year and Jonathan’s curvature of the spine is about the same (it cannot be corrected) and he has osteopenia (to be expected because of all his issues). He still using a wheelchair (he got a new one last year) to get around a lot of place, but now he can (with assistance) walk into his pew in the church auditorium from the van without the chair. However, he sometimes tries to leave church before the service is over so not sure this is good or bad 🙂
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